AUTHOR INDEX Allison, T. J., 8 Houston, M., 145 Hubble, C. L., 320 3aker, D., 276 Berkhof, R., 194 Beyer, J. E., 152 Billett, A., 20 Bjork, M., 265 Branowicki, P., 20 Jacob, E., 152 Joos, O. H., 119 Joseph, T., 194 Keenan, K., 194 Kelly, K. P., 58 King, N., 194 Kirk, S., 320 Carlson, C., 353 Clarke, J. N., 365 ) Conner, J. A., 176 Kline, N. E., 7, 79, Kools, S., 48 Delgado, K., 194 Dinning, C., 20 Doyle, S., 31 Lowry, J., 31 Epstein, I., 89 Ethier, A. M., 104, 112 Marino, B. L., 20 Mellema, H., 194 Fletcher, P. C., 365 Murphy, C., 31 Gibson, F., 249 Nolbris, M., 227 Greving, D. M., 38 Halistrém, I., 265 Hellstrém, A.-L., 227 Hendershot, E., 31 Hetherington, M., 320 Hitchens, A., 353 Honeyford, L., 31 Hooke, M. C., 261 O'Neill, J. B., 20 Parker, J., 194 Passmore, A., 276 Porock, D., 58 136, 193, 303 Linnard-Palmer, L., « Maloney, A. M., 254 Miaskowski, C., 152 Norton, C. K., 119 Pagano-Therrien, J., 32 Pranzatelli, M. R., 8 Purves, E., 168 Reichel, J., 194 Reilly, M., 353 Rollins, J. A., 203 Rosenblum, R. K., 114 Routhieaux, J., 160 Santacroce, S. J., 38, 328 Sarcone, S., 160 Savedra, M., 152 Schneider, M. A., 365 Sevier, N., 137, 145 Sidhu, R., 276 Stegenga, K., 160 Stevens, B., 89 Stinson, J., 89 Styles, L., 152 Svavarsdottir, E. K., 80 Tate, E. D., 8 Treadwell, M., 152 van den Hoed-Heerschop, C., 258 Van-Clieaf, ]., 31 Verhulst, S. J., 8 Volpe, J., 254 Ward-Smith, P., 320 Wiebe, T., 265 Wilson, K., 250 SUBJECT INDEX Activated partial thromboplastin time (aPTT) tests, 137-144 Acute care nurse practitioners (ACNPs), 254-257 Acute lymphoblastic leukemia, 328-338 \cute painful episodes and sickle cell disease, 152-159 Adrenoc orticotropic hormone (ACTH), 8-19 Advanced practice nursing, 254-257 Anthracycline extravasation, 261-264 Anti-CD40L therapy, 145-151 Art therapy, 203-221 Ataxia, 8-19 Azathioprine, 145-151 Bereavement The Fall of Freddie the Leaf: A Story of Life for All Ages book review), 112-113 and siblings, 222-296, 297-933 Bleeding disorders, 137-144 Bone mineral density (BMD), 328-338 Brain stem glioma neuro-oncology, 114-118 Buscaglia, Leo (book review), 112-113 Camps and health-related quality of life (HRQL), 89-103 for siblings, 276-287 ~ -ancer patients and cardiovascular disease, 38-47 and clinical trials, 353-364 and drawing as a communication tool, 203-221 lived experiences of, 265-275 and parent perceptions, 80-88, 276-287 ‘ardiovascular late effects, 38-47 ‘are planning, 194-202 serebral vascular accident (CVA), 160-167 ‘hemotherapy and cardiovascular disease, 38-47 delivery process of, 31-37 error reduction in, 20-30 treatment of, 339-352 Childhood cancer, 305-319 Children’s Healthcare Is a Legal Duty, Inc. (CHILD, Inc.), 48-57 Chronic refractory ITP, 145-151 374 Journal of Pediatric Oncology Nursing, Vol 22, No 6 (November-December), 2005: pp 374-376 = | = AUTHOR INDEX Allison, T. J., 8 Houston, M., 145 Hubble, C. L., 320 3aker, D., 276 Berkhof, R., 194 Beyer, J. E., 152 Billett, A., 20 Bjork, M., 265 Branowicki, P., 20 Jacob, E., 152 Joos, O. H., 119 Joseph, T., 194 Keenan, K., 194 Kelly, K. P., 58 King, N., 194 Kirk, S., 320 Carlson, C., 353 Clarke, J. N., 365 ) Conner, J. A., 176 Kline, N. E., 7, 79, Kools, S., 48 Delgado, K., 194 Dinning, C., 20 Doyle, S., 31 Lowry, J., 31 Epstein, I., 89 Ethier, A. M., 104, 112 Marino, B. L., 20 Mellema, H., 194 Fletcher, P. C., 365 Murphy, C., 31 Gibson, F., 249 Nolbris, M., 227 Greving, D. M., 38 Halistrém, I., 265 Hellstrém, A.-L., 227 Hendershot, E., 31 Hetherington, M., 320 Hitchens, A., 353 Honeyford, L., 31 Hooke, M. C., 261 O'Neill, J. B., 20 Parker, J., 194 Passmore, A., 276 Porock, D., 58 136, 193, 303 Linnard-Palmer, L., « Maloney, A. M., 254 Miaskowski, C., 152 Norton, C. K., 119 Pagano-Therrien, J., 32 Pranzatelli, M. R., 8 Purves, E., 168 Reichel, J., 194 Reilly, M., 353 Rollins, J. A., 203 Rosenblum, R. K., 114 Routhieaux, J., 160 Santacroce, S. J., 38, 328 Sarcone, S., 160 Savedra, M., 152 Schneider, M. A., 365 Sevier, N., 137, 145 Sidhu, R., 276 Stegenga, K., 160 Stevens, B., 89 Stinson, J., 89 Styles, L., 152 Svavarsdottir, E. K., 80 Tate, E. D., 8 Treadwell, M., 152 van den Hoed-Heerschop, C., 258 Van-Clieaf, ]., 31 Verhulst, S. J., 8 Volpe, J., 254 Ward-Smith, P., 320 Wiebe, T., 265 Wilson, K., 250 SUBJECT INDEX Activated partial thromboplastin time (aPTT) tests, 137-144 Acute care nurse practitioners (ACNPs), 254-257 Acute lymphoblastic leukemia, 328-338 \cute painful episodes and sickle cell disease, 152-159 Adrenoc orticotropic hormone (ACTH), 8-19 Advanced practice nursing, 254-257 Anthracycline extravasation, 261-264 Anti-CD40L therapy, 145-151 Art therapy, 203-221 Ataxia, 8-19 Azathioprine, 145-151 Bereavement The Fall of Freddie the Leaf: A Story of Life for All Ages book review), 112-113 and siblings, 222-296, 297-933 Bleeding disorders, 137-144 Bone mineral density (BMD), 328-338 Brain stem glioma neuro-oncology, 114-118 Buscaglia, Leo (book review), 112-113 Camps and health-related quality of life (HRQL), 89-103 for siblings, 276-287 ~ -ancer patients and cardiovascular disease, 38-47 and clinical trials, 353-364 and drawing as a communication tool, 203-221 lived experiences of, 265-275 and parent perceptions, 80-88, 276-287 ‘ardiovascular late effects, 38-47 ‘are planning, 194-202 serebral vascular accident (CVA), 160-167 ‘hemotherapy and cardiovascular disease, 38-47 delivery process of, 31-37 error reduction in, 20-30 treatment of, 339-352 Childhood cancer, 305-319 Children’s Healthcare Is a Legal Duty, Inc. (CHILD, Inc.), 48-57 Chronic refractory ITP, 145-151 374 Journal of Pediatric Oncology Nursing, Vol 22, No 6 (November-December), 2005: pp 374-376 = | = Chronic transfusion therapy (CTT), 160-167 Clinical nurse specialists (CNS) and evidence-based practice, 261-264 Clinical trials role of nursing in, 353-364 Coagulation disorders, 137-144 Communication and cancer patients, 203-221 and interdisciplinary care, 194-202 parent-sibling, 276-287 Complete blood count (CBC) values, 152-159 Corticosteriods late effects of, 328-338 Cultural beliefs and medical treatment, 48-57 Cyclophosphamide, 145-151 Cyclosporine, 145-151 Daclizumab, 145-151 Danazol, 145-151 Dancing eyes, 8-19 Death-related sensory experience (DRSE), 104-111 Drawing as a communication tool and cancer patients, 203-221 Drugs shortage of (editorial), 303-304 Dying process death-related sensory experience (DRSE), 104-111 The Fall of Freddie the Leaf: A Story of Life for All Ages (book review), 112-113 and siblings, 222-226, 227-233 see also End-of-life care Education for nurses, 119-120 for parents, 58-66, 112-113, 194-202 sickle cell disease, 160-167 Enbrel, 145-151 End-of-life care and ethics, 114-118, 119-120 and siblings, 222-226 see also Dying process Ethics and end-of-life care, 114-118, 119-120 and neuro-oncology, 114-118 Evidence-based practice and clinical nurse specialists (CNS), 261-264 Ewing’s Sarcoma, 339-352 Experimental Therapeutics Nurses (ETN), 353-364 Express Chemotherapy pilot project, 31-37 Extravasation, 261-264 Factor V Leiden thrombophilia, 176-181 The Fall of Freddie the Leaf: A Story of Life for All Ages (book review), 112-113 Family dynamics challenges of, 353-364 Fathers, see Parents Indexes ~I General Well-Being Schedule (GWB), 80-88 Grief The Fall of Freddie the Leaf: A Story of I ife for All Ages (book review), 112-113 and siblings, 222-226, 227-233 Growth hormone deficiency (GHD) and cardiovascular disease, 3 Guardianship loss of, 48-57 Hallucinations death-related sensory experience (DRSE), 104-111 Health care system problems accessing, 365-373 Health-related quality of life (HRQL) and camps, 89-103 Hemoglobin SS disease (Hgb SS), 160-167 Hemolytic disease of the newborn (HDN), 168-175 Hemophilia, 137-144 Home health care work of mothers, 365-373 HRQL (health-related quality of life) and camps, 89-103 Hypothalamic-pituitary axis (HPA), 38-47 Idopathic thrombocytopenic purpura (ITP), 145-151 Immune thrombocytopenic purpura (ITP), 145-151 Inherited coagulation disorders, 137-144 Interdisciplinary care, 194-202 Interferon @, 145-151 Kinsbourne syndrome, 8-!9 Late effects cardiovascular, 38-47 of treatment for childhood leukemia, 328-338 Lived experiences of families with children diagnosed with cancer, 265- Medical treatment refusal of, 48-57 Metastatic disease, 339-355 Moral beliefs and medical treatment, 48-57 Mothers, see Parents Myoclonic encephalopathy, 8-19 Near-death experience, 104-111 Neonatal alloimmune thrombocytopenia (NAIT), 168- 175 Neonatal hematologic disorders, 168-175 Neuroblastoma, 8-19 Neurocognitive sequelae sickle cell disease, 160-167 Neuro-oncology brain stem glioma, 114-118 Neutropenia, 168-175 | = 376 Indexes Nurse practitioners Phenomenology, 326-327 acute care nurse practitioners (ACNPs), 254-257 Polycythemia, 168-175 advanced practice nursing, 254-257 Predeath visions, 104-111 education, 119-120 Prophylactic anticoagulation, 176-181 experimental therapeutics nurses (ETN), 353-364 Protein C, 176-181 future roles of (editorial), 249 Prothrombin time (PT) tests, 137-144 history of, 25( research nurses, 353-364 Quality of life roles of, 258-260 and camps, 89-103 Obesity Radiotherapy and cardiovascular disease, 38-47 and cardiovascular disease, 38-47 Opsoclonus-myoclonus syndrome (OMS), 8-19 Religious beliefs Opso-myoclonus, 8-19 death-related sensory experience (DRSE), 104-111 Orders and medical treatment, 48-57 error reduction in, 20-30 Research nurses, 353-364 Osteogenic sarcoma, 194-202 Rituximab, 145-151 Osteoporosis, 328-338 Outpatient care Siblings chemotherapy, 31-37 involvement in patient care, 222-226 lived experiences of, 265-275 | Pain needs of, 227-233, 276-287 vaso-occlusive, 152-159 perspective of, 305-319 Palliative care, 119-120 see also Parents Parahemophilia, 137-144 Sickle cell disease Paraneoplastic syndrome, 8-19 neurocognitive sequelae, 160-167 Parents and vaso-occlusive pain, 152-159 and clinical trials, 353-364 Splenectomy, 145-151 education, 58-66 Stress lived experiences of, 265-275 and communication tools, 203-221 mother’s experience, 320-327 Stroke, 160-167 perceptions of, 80-88, 276-287 Strong model of advanced practice, 254-257 see also Siblings Partial exchange transfusion (PET) therapy Templated order sets polycythemia, 168-175 chemotherapy, 20-30 sickle cell disease, 160-167 Thrombin time (TT) tests, 137-144 Patient care Thrombopoietin, 145-151 history of, 2 > Thrombosis, 168-175 mothers’ home health care work, 365-373 Transcranial Doppler screening (TCD), 160-167 palliative care, 119-120 Patient education, 58-66 Vaso-occlusive pain, 152-159 Patient satisfaction Venous thrombosis, 176-181 chemotherapy, 31-37 Veridical hallucinations, 104-111 Pediatric oncology Vincristine, 145-151 history of, 250-255 Vitamin K deficiency bleeding (VKDB), 168-175 roles of nurse practitioners in, 258-260 Person Picking and Apple from a Tree (PPAT) assess- ments, 203-221